As of last week it had been 12 weeks since Owen had his blood drawn and sent to LA for a DNA biopsy. Everyday of the last two weeks i was silently (and not so silently) freaking out. Every time the phone rang I cringed. We avoided the mailbox often, which did not help. Aaron and I were anxious to say the least. We still had not heard from the Neurologist either. Last Wednesday at our life group I asked for major prayer for my anxiety, and that the results would come soon. I have to say God listened and answered our prayers. The next day, Thursday May 10th, I received a phone call on my break at work while I was on the other line with Aaron. I didn't recognize it, so I ignored it hoping they would leave a message. When they called again and didn't leave a message I googled the phone number. it was a line from the UCSF office. I texted Aaron and told him it was the call i had been waiting for. I wasn't ready at the time to hear the news, so I waited til' my lunch hour. I ran some errands, and got in my car and called the number back. Jamie Fisher answered (the UCSF gal we originally met with when we saw Dr. Curry). I told Jamie " I want to know, good or bad, I just want to know." --With every fiber of my being I prayed the three days straight before that, that God would take this from us, that this would all be some crazy misunderstanding. I prayed that if it was God's will that he would take this all away.-- and then she said "Owen does have a form of Muscular Dystrophy. It's a more rare form than Duchenne's, it's Becker's." The conversation continued, and I will be next to get tested. But all I heard in my own head was "Owen doesn't have a death sentence anymore. My baby is going live, a lot longer than expected, and I'm going to enjoy it all." GOD IS GOOD
This is still a serious diagnosis, however, but we were prepared for the worst. For us, this is great news. The next step is for me to get tested, and if I am the carrier, my sisters and daughter will be tested as well. Becker's is a slower progressing form of MD, which Jamie said symptoms may arise between 5 years of age and adulthood. This grants us time, time is on our side.
I received the best mother's day gift this year, the gift of life for my son, and grace. God's mercies are new every morning, and we will sing his praise! We serve such an amazing God. We are ready to walk this road with your support. We appreciate ALL of your prayers, thoughts, well wishes, gifts, and love. Matthew 21:22 NIV "If you believe, you will receive, whatever you ask for in prayer."
With thankfulness, appreciation, and JOY,
The Kelley's
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001725/
